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Chapter 3: Follow-up studies in chronological order
Wålinder & Thuwe, 1975
Psychiatric Research Center, St. Jörgens's Hospital,
University of Göteborg, Sweden
This unusually thorough
follow-up study picks up the thread of a previous
publication of Wålinder (1967) where -- for the first
time in Scandinavia -- a large sample of transsexuals was
presented extensively under clinical viewpoints. It
documents the further courses of treatment of patients
described and contains many important details for the
clinical physician who cannot be repeated here in this
short summary.
| Sample |
Females
(MFT) |
Males (FMT) |
| Total group* |
(58) |
(34) |
| In treatment** |
(26) |
(26) |
| Operated |
13 |
11 |
| Followed-up*** |
11 |
11 |
| *All patients who were
referred to the clinic with the supposed
diagnosis of transsexualism between 1962-74. **The referral diagnosis
was confirmed only for these 52 persons. All
others had either a psychosis or could not be
diagnosed certainly; the diagnosis transsexualism
did not fit them or their social situation was
such that it proved the measures for sex
reassignment could not be done.
***All persons who
had hormone treatment, a surgical sex
reassignment and a name and legal change at least
three years previously - independent if the
surgical procedure or the legal adaptation were
the last step. One female had emigrated; another
one had committed suicide postsurgically.
|
| Type of Treatment |
| Hormones |
13 |
Hormones 11 |
| Penectomy/orchidectomy |
13 |
Breast reduction 11 |
| Breast augmentation |
3 |
Hysterectomy/ovarectomy 3 |
| Vaginoplasty |
13 |
Clitoris surgery 1 |
| Age at Time of Surgery |
| Mean |
26.5 years |
28.2 years |
| Range |
21-42 years |
18-48 years |
| Time Period Between First Contact
with a Surgeon and Follow-up Study |
| Mean |
9.8 years |
10.5 years |
| Follow-Up Time Since Surgery or
Name Change* |
| Mean |
6.1 years |
7.5 years |
| Range |
3.5-11 years |
4-16 years |
| *The authors justify, in
deviating from other follow-up studies' starting
times, that starting with one or the other
occurrence "the patient was able definitely
to behave and generally to be regarded as
belonging to the opposite sex" (pp. 6-7).
This definition makes sense in view of the
specific legal situation in Sweden because a
legal sex change is possible before finishing
surgical treatment (comp. Will, 1992). The
follow-up study time periods for each patient are
rounded to half-years in the overview (p. 6) so
if for both measures the same age is given, it
cannot be determined which patients were operated
first, resp., had a name change first. At least
six females (MFTs) and four males (FMTs) had had
their names changed first and the time period to
surgery was mostly one to two years, in one case
seven years. |
Study
Methods
The authors who participated in indication and
treatment had one to two hour interviews with the
patients, with partially open and partially given
questions with fixed answer categories. Further, the
Swedish Social Security Register and Register of the
Governmental Health Insurance (in which all Swedes must
be registered) was viewed.
Evaluation Fields and
Criteria
Besides the criteria used by Money &
Ehrhardt (1970), namely the length of partnerships,
employment, criminal records, mental condition and
subjective evaluation of the surgical results, the
authors asked about sexual behavior, living conditions
and relationships with relatives. The Swedish Social
Security Register supplied data about alcohol abuse,
criminal records and need for social welfare and out of
the Register of the Governmental Health Insurance data
about illnesses and medical retirements. Special
evaluation scales were defined as (pp. 12-13) and include
the following topics which we summarize:
| Sexual
preference |
It
was asked about the sex of an erotically
attractive partner independently if the preferred
behavior was realized or not. |
| Strength
of libido |
Strong:
with corresponding spontaneous statement
Weak: with corresponding spontaneous statement
Average: when spontaneously neither described as
strong nor weak |
| Work
record |
0:
unsatisfactory: unskilled and frequent employment
changes; long-time unemployment 1: satisfactory: mostly
unqualified work, employment change on occasion,
occasional unemployment
2: excellent:
qualified work, constant work- place, no time
unemployed
|
| Living
conditions |
0:
bad: lives as sub-tenant, low standard, frequent
changes of residence 1: satisfactory: own apartment with
agreeable standard, occasional change of
residence
2: excellent: own
apartment with high standard
|
| Subjective
evaluation |
0:
unsuccessful, the new gender role cannot be
fulfilled, regrets the treatment 1: badly adapted to the new
role in parts, psycho-social problems, unhappy
with surgical results without questioning the
treatment
2: overall happy
with the treatment but still has one or another
psycho-social problem, or not totally satisfied
with surgical results
3: satisfied in
all regards
|
| The researches made two global
evaluations (p. 13) that were divided as follows: |
| Psycho-social
situation |
0:
failure, does not fulfil the new gender role.
Probably it would have been better not to have
made the treatment. 1: still severe psycho-social
problems. Social adaptation difficulties.
Regardless, the situation is overall better than
before.
2: good results
despite certain psycho-social or sexual problems.
Notable improvements in comparison to the time
before treatment.
3: in every regard
a good result. The psycho- social abilities have
improved in comparison to the time before
treatment. Good sexual adjustment.
|
| Appearance |
With
this evaluation the authors tried to play the
role of a third party and estimate how the
patient fitted overall with physical appearance
and expression into the new gender role. 0: The physical appearance
or other characteristics do not harmonize with
the new gender role (for example, very big-boned,
notable body hair or very deep voice in MFTs).
1: Some
characteristics of the body build, the movement
or voice level give away the original sex.
2: Body build and
appearance are overall satisfactory - except
details (for example big hands, rough facial
expression or a relatively deep voice in MFTs
that could raise doubts in the observer).
3: Body build,
movements and other details harmonize well with
the new gender role.
|
Results
Females: All females felt erotically
attracted to males, as had been the case before
treatment. Four females had a libido increase and two a
decrease. Overall the post-surgical sexual adaptation was
very good for two females, for five satisfactory and bad
for four females. While pre-surgically none of the
females were married post-surgically seven entered
marriage, of whom two were divorced again. Eleven of the
13 females had severe mental problems before treatment;
post-surgically five females were evaluated as bettered,
one as worsened, two as unchanged-good and three as
unchanged-bad. Employment situation: It was
unsatisfactory pre-surgically for six females, for seven
satisfactory. Post-surgically it was excellent for one
female, satisfactory for seven and unsatisfactory for
only four females. The living conditions were bad
for five females and for eight satisfactory
pre-surgically, while post-surgically it was bad for only
one female, for ten satisfactory and for two even
excellent. The conditions in this sector had improved for
six females. Additional to the four females who before
surgery already received social welfare post-surgically
two others received this type of support. The alcohol
abuse of two females was unchanged by the treatment.
Pre-surgically two females had criminal convictions
and post-surgically, one. During the treatment no female
received a medical retirement, but post-surgically
three females had such a retirement, mostly because of
psychiatric reasons. The relation to relatives and
their attitudes toward the patients did not worsen in any
cases, but improved in four cases.
Two females saw the treatment as unsuccessful and regretted
their decision. Five females evaluated the result as
good, even though they still had to fight with some
psycho-social problems. Satisfied without limitations
were five females.
The researchers evaluated one case as unsuccessful
and another one as hardly satisfactory, four as
satisfactory and five as very satisfactory. The appearance
was evaluated for two females as relating badly to
the new gender role, for four females as satisfactory and
for five as very good.
Males: All males felt erotically attracted
to females, as had been the case before treatment. For
three men, the libido increased and for one it decreased.
Overall the post-surgical sexual adaptation for
three males was very good, for five satisfactory and for
three males bad. Pre-surgically three males were married
and post-surgically nine were married - of whom one -- at
the time of the follow-up study -- was divorced again.
Nine of the 11 males had pre-surgically severe mental
problems. Post-surgically eight males were evaluated
as mentally improved, two as unchanged-good and one as
unchanged-bad. The employment situation was
unsatisfactory for four males and excellent for one
before surgery. After surgery only two males were
classified in this areas as unsatisfactory, while three
were satisfactory and six were excellent. The living
conditions was pre-surgically bad for four males, for
seven satisfactory. Post-surgically six males had
improved so that the living conditions of nine were
satisfactory and two excellent. The social welfare (four
males), alcohol abuse (two males) and criminal
convictions (two males) had no noticed change. Medical
disability retirement was not received by any male.
The relationship with relatives and their
attitudes towards patients did not worsen in any case.
Subjective was none of the males so unsatisfied with the
results that he would have regretted the treatment. One
male got along relatively badly in the new situation and
had to continue fighting severe psycho-social problems.
Three males evaluated the results as good and seven were
satisfied with every aspect of the treatment.
Case
Studies
More than half of the publication (40 of 72
pages) is dedicated to the explicit representation of all
patients' histories that are divided into history, first
contact, treatment, follow-up treatment and
representation of results.
Suicide Attempts/Role
Re-reversal
Pre-surgically six of the MTFs had attempted
suicide once or more. Among these are also those two who
were not available for the follow-up study.
Post-surgically three suicide attempts were documented
for females. Two of the three females belonged to those
six who had attempted to take their lives pre-surgically.
One female died two years after surgery because of a
sleeping pill overdose. She had many surgical
complications but appeared to the researchers in previous
examination dates to be balanced and not depressed. The
authors do not see an immediate connection between the
sex reassignment and the suicide of this patient. Two
females were evaluated as unsuccessful and regretted
having made the gender reassignment. The explicit case
representation (pp. 33-37) showed that this regret was
not connected to a desire to re-revert roles.
Of the FMTs three had attempted suicide pre-surgically.
One of these three males attempted suicide again after
surgery.
Follow-up Studies Mentioned
Benjamin, 1966; Hoenig et al., 1970a, b, 1971;
Money & Ehrhardt, 1970; Pauly, 1968, 1974; Randell,
1969
Authors' Conclusion
The authors think that a follow-up study time
of at least three years since name change, resp.,
surgery, as sufficient to evaluate long-term results that
are not influenced by the immediately post-surgically
observed alleviation effect. A major part of the
difficulties experienced post-surgically by transsexuals
they attributed to shortcomings of the
psychiatric-psychotherapeutic and mostly the surgical
treatment. They think that their sample is too small to
make big statistical analyses so that they cannot work
out the reasons to attribute treatment successes.
"The result of our follow-up study has been rather
more positive then we had dared to hope... When we
consider the severe suffering and the many difficulties
experienced by untreated transsexuals in various spheres
of life, the treatment programme appears to be fully
justified, both medically and ethically" (p. 31)
Indication Recommendations
As risk factors and relative
contra-indications against hormonal and surgical
treatment the authors mention:
| (1) |
Unstable,
immature personality with documented difficulty
to be able to have satisfying social
relationships. |
| (2) |
Big
distance between the residence of the patients
and the treatment facilities which leads to
difficulties in maintaining regular contact. |
| (3) |
Incomplete
or superficial counseling of the patient about
the possibilities and, above all, the limits of
the treatment (..). |
| (4) |
Long
interruption and inadequate dosage of hormone
treatments. |
| (5) |
Psychoses,
mental handicaps, severe lack of intelligence,
severe alcohol or drug abuse and repeated
criminal convictions. |
| (6) |
Physical
appearance with unchangeable characteristics that
make an inconspicuous integration into the new
gender role impossible. |
| |
|
| Mentioned as most important prerequisites
for the indication are: |
| (1) |
The
diagnosis must be secured by at least a
one-year-long. better two years, by physicians
who know the syndrome. The beginning, course and
symptomatology must be typical. The examination
must include extensive psychiatric observation
and somatic clarification of possible medical
causes for the symptoms. Stationary psychiatric
observation is recommended, also psychological
tests with masculinity-femininity scales should
be made. |
| (2) |
The
patient should have lived one year in the other
gender role and demonstrate with it the
capability to cope with the difficulties expected
as a rule. |
| (3) |
Before
initiating medical or legal measures, the social
situation should be, as far as possible, under
control. Good indicators for this are
professional situation, attitudes of relatives
etc. |
| (4) |
It
has to be clarified if another form of treatment
is possible or has a chance for success. |
| (5) |
Regular
contacts with the treatment team during the
observations and during active treatment phase
must be given. |
Remarks
This research is exemplary with its exact
and explicit katamnestic statements for each patient, the
operationalyzing of evaluation criteria and the
evaluating discussion of findings. Especially in the case
studies it is notable how the post-surgical findings were
put in relation to the pre-surgical initial data.
Improvement or worsening of the situation of patients are
described to such an extent that the evaluation of the
authors can be followed; it is also discussed in how far
the described changes are in relation to the treatment or
whether to be seen independently from it.
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