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Chapter 3: Follow-up studies in chronological order
Meyer & Reter, 1979
Dept. of Psychiatry,
Johns Hopkins University School of Medicine, Baltimore,
MD, USA
This follow-up study,
started in the year 1971 -- whose results were presented
for the first time at the Annual Meeting of the American
Psychiatric Association, May, 1977, in Toronto, Canada
and was then hardly noticed -- has found in the Western
professional world and also in the lay press, a great
resonance after its being published in the Archives of
General Psychiatry in August 1979. One can call it the
most noted and disputed follow-up study, where the
dispute was less by its many times falsely-cited results
than the accompanying statements of the first author who
saw a connection between this publication and the
stopping of sex reassignment surgery at the renowned
Johns Hopkins University Clinic.
In this clinic a sex reassignment surgery was done for
the first time in a North American university clinic in
1960. More specifically, a double-sided sub-cutaneous
mastectomy was performed on an FMT. Previously it had
only been available abroad and maybe in private clinics
for US-American patients - so it was, through this act,
converted into a serious treatment, even though it was
not undisputed. Like the first surgical procedure, the
establishment of the Gender Identity Committee at the
Johns Hopkins University Clinic some years later (1965)
was a signal for other US (American) university clinics.
Correspondingly noticed were press releases that sex
reassignment surgery was not done any more at the Johns
Hopkins University Clinic; it was connected to the
publication of the follow-up study by Meyer & Reter.
(TIME took the study to demonstrate that there are
"no differences in long-term adjustment between
transsexuals who go under the scalpel and those who do
not". The New York Times cited Meyer, "My
personal feeling is that surgery is not a proper
treatment for a psychiatric disorder and it's clear to me
that these patients have severe psychological problems
that don't go away following surgery" [both cited
from Fleming et al., 1980, p. 451, but there without
giving dates or pages]). In reality, the stopping of
surgery had other reasons than the results of the
follow-up study: namely, first, the resignation of the
surgeon, second, that the Johns Hopkins University Clinic
wanted to make pioneer work and did not follow up with
once-established treatment methods to keep more research
capacity free and, finally, the personal rivalry within
the Gender Identity Committee had an important role
(comp. Lothstein, 1980; personal writing from John Money
to F.P.). Disregarding these circumstances, patients with
transsexual symptoms were still diagnosed and given
psychiatric care, and in as far as indicated, were
transferred somewhere else for surgery.
The idea of the follow-up study was to stop for a moment
after the gender reassignment surgery became, in a
certain way, routine, and see the long-term results
("To step back from 'normalization," p. 1010).
The description of the research group forces the
conclusion that the samples described by Money &
Ehrhardt (1970), Money (1971) and Jones (1972) are
contained in the sample of Meyer & Reter without
being so noted.
| Sample |
Females
(MFT) |
Males (FMT) |
| Total group |
100 |
|
| Not operated* |
66 |
|
| Of these, followed-up |
28 |
7 |
| Operated** |
34 |
|
| Of these, followed-up*** |
11 |
4 |
| *All those who have been
seen until 1971 at the Johns Hopkins University
Clinic. Of the 35 not operated and followed up,
14 (40%) were operated by the ending time of the
follow-up study; of these five after a regular
passing of the treatment program at the Johns
Hopkins University Clinic and nine by
circumventing the there-required limitations at
other clinics. Twenty one (60%) were still in
treatment and still pursued, though with varying
intensities, the goal to be operated. Five (14%)
had abandoned the active pursuit of this goal. **All who have been seen
there until the mentioned time. Of these, 24 were
operated there and ten elsewhere. Only 21 of the
34 had taken hormones regularly pre-surgically
and had lived and worked over a longer time
period in the other gender role.
***A total of 52
of 100 persons could be localized for the
follow-up study, but two prohibited the
publication of their data, so that only data of
50% of the first sample could be presented. The
localized follow-up study group was
representative in the main data (age,
socio-economic status, gender, etc.) for the
total group.
|
| Follow-Up
Time |
not
operated
(since first contact) |
Operated
(since surgery) |
| Mean |
2 years |
5 years |
| Range |
1-4 years |
1-12 years |
Study
Methods
The primary author -- who participated in the
indication and treatment (at least with the non-operated,
resp., those who were operated in a course of the
follow-up study) -- made two to four-hour interviews.
They were done on tape, transcribed and evaluated later
on. The non-operated were considered as an approximation
for a control group for the operated. Because in the
course of the follow-up study, 40% of the originally non-
operated were operated, the authors finally made three
principle groups (operated [n=15], operated in the course
of the follow-up study [n=14] and not operated [n=24])
and further sub-groups (operated at the Johns Hopkins
Clinic or somewhere else; operated with or without
complete pre-treatment).
Evaluation Fields and
Criteria
Contents of the interviews were questions
about the present adjustment (for example, residence
stability, education, profession), biographical
adjustment(for example, family bonding, educational
curriculum) and finally about fantasies, dreams and
sexual activities.
Only that information that the author classified as
observable and objective from the first interview part
were regarded in the publication. They were divided into
four categories based on the following scoring system:
| Legal |
|
| Only arrested |
-1 |
| Arrested and jailed |
-2 |
| |
|
| Economic situation (job
level according to Hollingshead) |
|
| 1 or 2 |
+3 |
| 3 or 4 |
+2 |
| 5 or 6 |
+1 |
| 7 or 8 |
0 |
| |
|
| Cohabitation |
|
| Cohabit |
|
Gender-appropriate
Nongender-appropriate
|
+1
-1 |
| Marriage |
|
Gender-appropriate
Nongender-appropriate
|
+2
-2 |
| |
|
| Psychiatric |
|
| Contact |
-1 |
| Outpatient treatment |
-2 |
| Hospitalization |
-3 |
| |
|
| As a measure for social
stability, the residence stability was chosen. |
Results
Professionally, the operated and not
operated improved marginally, where the improvement for
operated was slightly greater. For the operated the psychiatric
contacts decreased from 33% to 8% and in the
comparison group from 72% to 28%, wherein those contacts
were mostly about forcing the admission to the operation.
The number of psychiatric hospitalization no
mentionable differences were established. Also regarding
the residence stability the research and
comparison group did not differ notably.
More important than these single aspects are the results
of the global evaluation obtained by the scoring
system described above. For this the three main groups
(operated, operated in the course of the follow-up study
and not operated) were compared. For all three groups it
was found that the mean values improved and the range and
standard deviation were smaller. Also the mean values
among the three groups did not differ statistically
significantly at the time of the follow-up study. On
average, the sub-group with the worst scoring were those
who had abandoned the treatment program at the Johns
Hopkins University and obtained the surgery somewhere
else. Among the original operated, those seemed to score
on average somewhat better were those who had lived the
trial period, that is, the pre-surgical life in the other
gender role most consequently. Single scores for the
sub-groups are not shared because the procedure by which
the results were obtained was methodologically
questionable (see remarks).
Suicide Attempts/Role
Re-reversal
One male had, in connection with phalloplasty,
severe complications and wanted -- after multiple
unsuccessful corrective surgeries -- to have the newly
made penis removed again without questioning the other
steps of the sex reassignment. This patient was, for a
short time, in psychiatric inpatient treatment for drug
dependency and suicidal tendencies.
Follow-up Studies Mentioned
Benjamin, 1966; Edgerton & Meyer, 1973;
Hamburger et al., 1953; Hastings, 1974; Hore et al.,
1975; Money, 1971; Randell, 1969
Authors' Conclusion
Indication Recommendations
"At the most simple level, these data
suggest that significant change in adjustment scores may
be achieved either through surgery or through the passage
of time in association with some contact and acceptance
into an organized evaluation program. Operated patients
who could not withstand the rigors of a trial period of
living and working in the desired gender role clearly did
less well than the unoperated subjects or their fellow
operated subjects...None of the operated voiced regrets
at reassignment, the operative loss of reproductive
organs, or substitution of opposite sex facsimiles
(except one, previously noted). Socioeconomically,
operated and unoperated patients changed little, if at
all " (p. 1014).
The authors summarize "the most conservative
interpretation of the data is that among the applicants
for sex reassignment there are operationally two groups
who, in the face of a trial period, will self-select for
or against surgery, and that in either instance
improvement will be demonstrated over time, as judged by
observable behavioral variables. Sex reassignment surgery
confers no objective advantage in terms of social
rehabilitation, although it remains subjectively
satisfying to those who have rigorously persued a trial
period and who have undergone it (p. 1015).
Remarks
Because this publication is cited
frequently by the professional and lay literature it
seems important to us to demonstrate extensively why the
results of this work are not very enlightening and cannot
support the conclusions derived from them.
The scoring system used by the authors is
undifferentiated because it is, for example, not evident
if an arrest happened because of cross-dressing or for
real crimes; if the partnerships classified as
gender-appropriate, resp., as nongender-appropriate were
partnerships of operated that existed over the time
period of the operation or they were entered into
post-surgically; if they are living partnerships or
sexual partnerships; if the surgical results permitted to
have sexual intercourse or not and if the psychiatric
contacts, resp., inpatient treatments, came about
exclusively because of the persistent pursuit of the goal
sex reassignment or happened because of other psychiatric
illnesses. One does not learn, for example, if also the
routine contacts to the care-providing psychiatrist are
counted or not.
The valuing done by the authors is absurd because, for
example, the gender of the partner with whom a patient
lived was evaluated pre-, resp., post-surgically as
opposite. A single who possibly was not capable of having
a long-term relationship and not maintain it received a
better score (0) than an MFT who had lived for years with
a female friend (and had an intimate relationship?) and
did this past the time period of the operation, but whose
relation after the operation was evaluated as
nongender-appropriate (-1). An inpatient psychiatric
treatment was evaluated more negatively (-3) than a jail
term (-2). The professional of plumber (Hollingshead job
level 4) counted exactly as much as post-surgical
"gender-appropriate marriage" (+2).
The tables and figures shared by the authors do not seem
serious because after the scoring table a maximum of only
eight minus and five plus points can be achieved, but in
the results table (p. 1014) a range from -18 to +19
points is given. How these figures came about remains
totally in the dark. The presumption made by Fleming et
al. (1980) that every category could be scored multiple
times, is negated by the following thought: It is
imaginable that with a multiple evaluation a number of 18
minus points can come about - by three stationary
psychiatric admittances (3 times -3) plus three jail
terms (3 times -2) plus three "nongender-appropriate
partnerships" (3 times -1). It is unfathomable,
however, how 19 plus points can be achieved with the
scoring system,unless by, for example, five gender
appropriate marriages (5 times +2) plus three different
academic professions (3 times +3) within a follow-up
study period.
One asks the question how it came about that a renowned
professional publication published such opaque figure
material. Meyer & Reter considered the shared data
for the, in a sense, most objective data of their
sampling and left out as good as all subjective
statements of the follow-up study. It is possible that
there was more to be learned from them.
Not without a problem is also the use of the not-operated
as a control group, especially because 40% (14 of 35) of
the not-operated had surgery in the course of the
follow-up study and the other 21, even if not very
decided, further pursued the goal to be operated. If the
operated, in the course of the follow-up study, were
counted in the partial sample right away of the operated,
the average follow-up study period would have been
shortened. How the other results could have been changed
by this cannot be fathomed; the authors do not have any
comments or calculations for this (comp. the remarks to
the publication by Edgertom & Meyer [1973] and the
critiques by Fleming et al. [1980], Lothstein [1982] and
Abramowitz [1986]).
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