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Chapter 3: Follow-up studies in chronological order
Hunt & Hampson, 1980b
Dept. of Psychiatry and Behavioral Sciences, Gender
Dysphoria Clinic, University of Washington, Seattle, WA,
USA
This publication reports
about methodologically clearly structured research. A
patient group that had received at the same institution a
widely unified treatment was analyzed with a standardized
data gathering instrument (Hunt & Hampson, 1980a).
The evaluation is done by two researchers independent of
one another, one of whom participated in the treatment.
The result representation is hardly clear because it
mostly limits itself to the sharing of measuring values.
| Sample |
Females
(MFT) |
| Total group* |
(250) |
| Operated and followed-up |
217 |
| *All patients who consulted
the above-mentioned institution for sex
reassignment surgery. In the publication there is
no differentiation of sexes so that possibly FMTs
are included in this number. **Accepted into the
treatment program and operated were patients if
they fulfilled the following conditions: 1.
Long-term cross-gender identification, otherwise
irreversible, and not associated with a psychotic
state. 2. Physical appearance, demeanor and
behavior had to be feminine and the patient had
to have lived at least six months in the desired
gender role. 3. Measured by intelligence tests,
the patients had to be capable of understanding
the possibilities and limitations of treatment
and it was expected that they could cope with
possible complications.
|
| Follow-up Time Since Surgery |
| Mean |
8.2 years |
| Range |
6.3-11 years |
Study
Methods
The primary author, who was a member of the
previous selection team, maintained a year-long direct
contact either in writing or by telephone with most of
the patients. The secondary author was, presumably, an
independent evaluator. Both authors had one to three-hour
long interviews with 13 of the 17 females; 11 interviews
were done in the presence of both researchers, two by
just one researcher. These two conversations were
protocoled on tape and later evaluated by the other
researcher. With the four females who could not come to
interviews due to the distance involved, in the course of
one year, at least five phone calls were made. Additional
information about patients was gathered from family
members or others who had close contact to patients.
Based on this information, all 17 females were evaluated
by a standardized rating scale (Hunt & Hampson,
1980a). Additionally patients did a series of psycho-diagnostic
questionnaires (MMPI, WAIS, Reitan Battery,
Interpersonal Discrimination Task). Data for the pre-surgical
situation was compiled by the primary author
retrospectively by means of clinic files.
Evaluation Fields and
Criteria
Through a standardized four-step rating scale
published in the annex of the publication, the following
areas were evaluated by the authors: Stability of
employment; financial independence; stability of social
contacts; satisfaction with social contacts; current
support system; psycho-pathological conspicuosness; drug
abuse; legal problems; gender identity; choice of sex
partner; function of the vagina; sexual satisfaction;
additional cosmetic procedures; present reaction of the
family.
Results
For each female the results are given in the
form of total scores measured for the situation at the
time of the follow-up study. Of a maximum 45 points
possible, three females had 40 or more, 11 had 30 or
more, two more than 20 and one 16. The mean is
33.9.
Besides this, pre- and post-surgical characteristics are
compared in five areas. The economic adjustment (maximum
score of 6) improved as mean from 3.2 to 4.5; three
patients worsened in this area. The interpersonal relationships
(maximum score of 9) improved as a mean from 5.2 to
6.8; for five females a worsening was observed. The
average score for psychopathologic characteristics (6.7;
maximum value of 9) was unchanged; four females had a
worsening in this area. The sexual adjustment (maximum
score of 3) improved in the mean from 1.0 to 2.2; only
one female had a slight worsening. Also there was a
worsening in the reaction of the family; as a mean
the score improved for patients in this area from 0.7 to
1.7 (maximum score of 3). Twenty-four percent of the
females had a ">driven< need for further
surgical procedures similar to that seen in precastration
applicants" (p. 436). All results are ordered by
areas, represented in tabular form. Clinical details or
individual courses are not shared.
Suicide Attempts/Role
Re-reversal
Two females had attempted suicide - one year
after surgery for one, and for the other six years after
surgery. In both cases the authors saw no connection to
the gender reassignment but with actual partnership
conflicts. The pre-surgical suicidal tendencies are not
quantified. It is only said that "in fact many
enthusiastically volunteered that the changes were
responsible for their being alive at the time of
follow-up" (p. 435).
None of the females expressed the desire to revert back
into the former role. To the contrary of the subjective
judgement of the females, the authors seriously doubted
that some of the females felt like females.
Follow-up Studies Mentioned
Benjamin, 1966; Hastings, 1974; Hertz et al.,
1961; Hoenig et al., 1971; Hore et al., 1975; Meyer &
Reter, 1979; Money & Ehrhardt, 1970; Pauly, 1968;
Randell, 1969; Stürup, 1976; Wålinder & Thuwe, 1975
Authors' Conclusion
The authors consider the follow-up study
period sufficiently long to achieve conclusions about the
effectiveness of treatment by the results. "Although
the group was quite diverse, it would appear that on the
whole they fared well" (p. 435).
Regarding psychodiagnostic testing, they remarked that
changes of psychopathology, in as far as they were
measurable by the testing methods employed, could not be
objectivized. They did not find an affirmation of the
hypothesis that patients who, measured by the employed
psychodiagnostic testing methods, were found to be more
differentiated would profit more from the treatment than
the non-differentiated ones.
Indication Recommendations
Regarding the prognosis, and thereby also the
indication, the authors see the best predicator in a
successful pre-surgical life in the other gender's role.
At the same time, they say that the indication for
hormonal and sex reassignment should not be done
automatically after a successful Real-Life-Test.
Additionally, the "presurgical ego strength"
(p. 436) must be considered. For the rest, the indication
recommendations correspond to the admittance criteria
(see above) in the treatment program.
Remarks
It is to be viewed critically that
information about the type of treatment applied is
missing. This is valid for the psychiatric or
psychotherapeutic treatments as well as for the hormone
treatment and each of the surgical interventions.
Regarding the representation of results, it would be
desirable that something would have been shared above the
global scores, something about the post-surgical state of
the females, especially because in the areas
differentiated information was compiled.
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