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Chapter 3: Follow-up studies in chronological order
Lindemalm, Körlin & Uddenberg, 1986
Dept. of Psychiatry and Psychology, Karolinska
University Hospital, Stockholm, Sweden
The authors did not
participate in any way in the treatment or indication of
the followed-up persons. They believe their high rate of
non-success, about 30%, to be more accurate. Although it
deviates from the rest of the follow-up study literature
-- with a maximum of 20%, which they call still too high
-- they think that they are, to the contrary of other
researchers, more free (than other researchers) because
they do not have to justify their work.
| Sample |
Females
(MFT) |
| Total group* |
40 |
| Operated |
17 |
| Followed-up** |
13 |
| *All patients who had
presented themselves with the diagnosis
"gender dysphoria syndrome" through
June 1979 at the clinic. **To be accepted in the follow-up
study, at least six years had to have passed
since surgery. For two females this time period
was shorter. Another patient had committed
suicide and one had moved abroad.
|
| Type of Treatment |
| Penectomy/orchidectomy |
13 |
| Vaginoplasty* |
9 |
| *Six females were operated
with the technique of McIndoe (1950) and two with
the modification of this technique by Skoogs
(Ohlsen & Vedung, 1981). For three females
who were operated in 1954 and 1955, only a
penectomy and castration were done without making
a vagina or vulva. Two females had atrophied
vaginas; one had non-classified fistulae as well
as severe scarring of the peritoneal area. Period of surgery 1954 -
1975.
|
| Age at Time of Surgery |
| Median |
34 years |
| Range |
21-50 years |
| Follow-up Time Since First
Presentation at the Clinic |
| Median |
16 years |
| Range |
6-24 years |
| Follow-up Time Since First
Surgery |
| Median |
12 years |
| Range |
6-25 years |
| Age at Time of Follow-up Study |
| Median |
51 years |
| Range |
27-62 years |
Study
Methods
With 11 of the 13 females two psychiatrists
together, who did not participate in the treatment or
indication, held semi-structured interviews of three to
six hours. The sessions were taped, transcribed and
evaluated by each of the interviewers separately using an
evaluation scheme developed by the authors. (An exact
presentation of the methodological proceeding was
announced for a later publication.) Information about two
females who could not be interviewed were taken from
clinical records. The surgical results were evaluated
from the files and the subjective statements by the
females. Four females were examined and rated by
gynecologists and surgeons. Two females refused a
physical examination. For them, the surgical results were
evaluated alone by the file and existing reports of
previous findings.
Evaluation Fields and
Criteria
For the global evaluation of the psycho-social
adjustment the following seven areas were evaluated
in the pre-surgical as well as the post-surgical
situation and from this, a sum score was formed and
compared. Justified by space reasons in the publication,
only definitions of extreme values (1=very poor and 4=
good) were indicated - not the values in between: 2=poor
and 3=fair (pp. 209-210).
| Working
capacity |
| (1)
Very poor working capacity. Long periods of sick
leave. Disability pension. Extremely short
employments without functioning satisfactorily |
| (4)
Good working capacity. Stability of employment.
Promotions. |
| |
| Relative
relations (relatives are parents, parent
substitutes, and siblings but not partners or
children of one's own.) |
| (1)
No relations or extremely conflict-laden
relations to relatives. Very impersonal contacts
or total rejection. |
| (4)
Good relations to relatives. Even if the
frequency of contact is not very high, there is
an atmosphere of mutual trust and openness. |
| |
| Friend
relations (partners are not included. Workmates
are included only if there is contact outside
work). |
| (1)
No friend relations or very short and shallow
relations. The patient is isolated and lonely. |
| (4)
Wealth of friends and acquaintances. Even if a
relatively small percentage of leisure time is
spent with friends, deep and warm relations are
sustained with a group of friends. |
| |
| Partner
relations |
| (1)
No partners or only impersonal sexual relations
as in prostitution. (Thus even with a high number
of partners the rating could be low.) Short
duration and high level of conflict in any
relation. |
| (4)
Good relations to partners. Most of the time the
patient has a relation to a partner and has
succeeded in sustaining a lasting relation to at
least one partner. The relation is characterized
by openness and mutual understanding. |
| Mental
health |
| (1)
Severe psychopathology. Psychosis, deep
depressions, serious character disorders, etc.
Hospitalization for mental insufficiencies |
| (4)
Insignificant mental symptoms or absence of
mental problems. Only occasional crisis
reactions. |
| |
| Drug
abuse (abuse of alcohol, narcotics, or
sedatives.) |
| (1)
Severe abuse with social deterioration and
contact with legal authorities (Temperance board) |
| (4)
Includes teetotalism or occasional consumption of
sedatives or alcohol, if there is no pattern of
overconsumption |
| |
| Criminality |
| (1)
Heavy criminal affliction with repeated
imprisonments. Criminal identity |
| (4)
No criminality whatsoever, or only occasional
offenses that do not have the character of
violent crimes, i.e. pilfering or single traffic
offenses |
For the global evaluation of the sexual adjustment the
strength of the libido, sexual activity with one partner,
number of partners, sexual orientation and quality of the
partnership relations were regarded. Finally, the
researchers evaluated the physical appearance of
the females.
Results
The surgical results were evaluated by
the authors overall as unsatisfactory (comp. the remark
to the section Type of Treatment). Two female vaginas
were too short, both by self-evaluation and external
evaluation. One female, despite good surgical results,
had pain during intercourse. For three females the
surgical results were evaluated in the external
evaluation as excellent, even though one had
self-evaluated them as being poor.
Regarding the viewpoint if the female post-surgically
opened the vagina with the use of a dilator as
recommended by the surgeons, only two females were
uncooperative, while three others could not make a
dilation because of poor surgical results or an
improvement could not be expected by it.
The sexual adjustment was unchanged in the global
evaluation for nine females; for three it had improved
and for one it had worsened. Six females experienced
orgasms in connection with different sexual practices
post-surgically. Six females felt attracted to males pre-
and post-surgically; three who had had contacts to males
and females pre-surgically had only contacts to males
post-surgically; one female classified herself as a
lesbian.
In regard to partnership relations pre-surgically
all patients were evaluated as poor or very poor.
Post-surgically the evaluation was better for five
females and for one it was worse.
Compared to the pre-surgical situation the evaluation
regarding the psycho-social global evaluation had
improved for four females; for one it had worsened and
for eight it was unchanged. Five females had improved
professionally, four had worsened. The relationship to
family, friends and partners improved slightly, but the
mental health rather worsened.
Single Case
Studies
All patients were known by a fictional first
name. The results in most areas are given in annotated
form specified by person without enabling forming with
the many dispersed mosaic pieces the personality
characteristics or biographical data.
Suicide Attempts/Role
Re-reversal
One female had committed suicide shortly after
surgery. She was not regarded in the follow-up study. One
patient lived again as a male and fought to be legally
recognized again as a male. Another patient lived with a
female mate more or less in a male role.
Follow-up Studies Mentioned
Hertz et al., 1961; Hunt & Hampson, 1980b;
Lundström, 1981; Pauly, 1981; Pomeroy, 1969; Randell,
1969; Sörensen, 1981a, b; Stürup, 1976; Wålinder &
Thuwe, 1975
Authors' Conclusion
Overall the authors think that for four
patients the indication for sex reassignment was to be
evaluated in retrospect as failed indication. They came
to this conclusion by not only considering the explicit
repentance about the surgery (one patient) but also the
indirect repentance remarks as well as the overall bad
social adaptation as a sign for a wrongly indicated
surgery. By this, they come to a non-success rate of 30%.
They discuss if a high rate of disappointing surgical
results are due to the relatively insufficient surgical
techniques of 1954-74, especially because between
cosmetically and functionally good surgical results and a
favorable "sexual adjustment" a positive
statistic trend (p=0.18) was found. They deem further
long-term follow-up studies as necessary to work out
factors that are prognostically favorable and important
for the indication.
Remarks
Compared to the flat success notices of
many methodologically little elaborated follow-up studies
presented here, this publication impresses, especially
because the authors treat a wide spectrum of questions
and analyze more extensively than many other publications
the results of other follow-up studies. Exact examination
of their data shows that they also proceed selectively.
For example, their statement -- that except for Hertz et
al. (1961), Hunt & Hampson (1980b) and Wålinder
& Thuwe (1975) there is no other follow-up study in
literature with follow-up study results in time periods
of more than three years -- is not true.
In this study remarkable are -- apart from the
longer than average follow-up study time -- the
indications when the patient presented themselves for the
first time instead of only measuring the post-surgical
time, as well as the wide spectrum of questions. Despite
this, only the surgical intervention is accepted as
treatment and independent variable. In how far above this
patients had other psychiatric or psychotherapeutic help
is not even questioned by the psychiatrists who led the
research.
In as far as the single case studies allow evaluations,
it is impressive how badly the patients were operated and
that they had to fight for years for the legal
recognition of their new gender roles. Professional
demotion and isolation in as far as they are reported
about are not to be considered simply as immediate but as
least as secondary consequences of a gender reassignment.
The authors' search for indirect regret expressions or
signs lets us suppose a rather overly critical prejudice
that does not consider that transsexualism has to be
understood as a more or less successful stabilizing
symptom forming, in which the subjective experience of
"success" weighs more heavily than objective
clinical files and surgery reports. This is why it is
viewed by us as critical that two females who could not
be interviewed were regarded in the evaluation anyway and
that the surgical and sexual results for two females who
refused the physical examination were simply evaluated as
negative.
By giving fictitious first names to females whose
personal data naturally had to be kept confidential, the
authors suggest a familiarity with the females and their
biographies that does not necessarily stem from follow-up
studies of three to six hours with two unknown
psychiatrists. Even if it is right that a follow-up
researcher who participated in treatment can have a
positively tending prejudice, a follow-up study
researcher who explores patients six to 25 years after
surgery should think what types of expectations and hopes
he activates by it. That the representation of the
subjective experience can be distorted just as much as an
earlier treatment giver is not reflected in this
publication.
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