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Chapter 3: Follow-up studies in chronological order
Dudle, 1989
Dept. of Endocrinology, Medical University Clinic and
Psychiatric University Clinic, Bern, Switzerland
In the year 1969 a Gender
Identity Committee modeled after the American Gender
Identity Committees, an interdisciplinary work group for
the treatment of transsexuals, was constituted. This
medical dissertation describes probably a representative
sample (see Remarks) of operated patients from
Switzerland by use of the evaluation of clinical files.
It diverged from other follow-up studies by its overview
ability and the detail precision, comparison of single
case results with some from other follow-up studies as
well as an extensive discussion of fundamental
methodological problems. The sample of the follow-up
study Simona-Politta (1983) is included in the present
research again. Correlations and deviations of results
attained by different methods in both researches are
extensively represented and discussed. Also the follow-up
study by König et al. (1970a) as well as Zingg et al.
(1980) are from the same patient collective but there
were no comparing calculations made to these.
| Sample |
Females
(MFT) |
Males (FMT) |
| Total group* |
(85) |
(35) |
| Operated |
45 |
21 |
| Followed-up** |
18 |
11 |
| *All patients who went to
the Endocrinologic Dept. of the Medical
University Clinic in the Bern Inselspitals
(University Clinic) between August 1, 1969 and
July 31, 1987 because of a gender identity
problem. **Those
patients were excluded who underwent surgery
elsewhere before they had the first contact with
the clinic (n=8; 5:3), who had no relevant entry
for more than four years in the clinical records
(n=14; 13:1), who were operated less than three
years previously (n=12; 7:5) or who expressively
forbade the evaluation of the files (n=1; 0:1).
Two patients (n=2; 2:0) could not be included in
any of the mentioned groups.
|
| Type of Treatment* |
| Psychiatric counseling |
18 |
Psychiatric counseling 18 |
| Hormones |
18 |
Hormones 18 |
| Penectomy/orchidectomy |
18 |
Breast reduction 11 |
| Breast enlargement |
4 |
Hysterectomy/ovarectomy 11 |
| Vaginoplasty |
18 |
Phalloplasty 1 |
*Treatment complications
for females: As complication of hormone
therapy within one year one woman had a
recurring lower leg phlebitis that led to a lung
embolism. This made it necessary to discontinue
the estrogens for some time.
Complications of the surgical treatment (primary
as well as corrective procedures) are documented
in 56% of the cases: nine times there was a
vaginal stenosis or shortening and one each a
urethral stenosis, necrosis of the labia minora,
pocket forming at the posterior labia fold,
uro-vaginal fistula and abscess forming.
Corrective surgery was done for eight females, of
whom half had to have more than one surgery. Four
females had cosmetic surgery done (nose
correction, n=2; facelift and lip correction, n=1
each).
Treatment complications for males: Complication
of the surgical treatment(for the primary
as well as corrective surgeries) is documented in
64% (seven of 11) of the cases: five times it was
a scarring on the breast, one time each pleats
below the breast and abscess forming. Five males
had to undergo surgery once each in the breast
area. Time
period of the surgery: 1981-1987.
|
| Age at Time of Surgery |
| Mean |
31.1 years |
25.3 years |
| Range |
21.0-54.9 years |
18.2-36.7 years |
| Standard deviation |
8.3 years |
5.9 years |
| Time Period Between Gender Role
Change and Surgery |
| Mean |
2 years |
1.5 years |
| Range |
0-6.9 years |
0.5-2.9 years |
| Standard deviation |
0.7 years |
0.7 years |
| Length of the Pre-Surgical
Hormone Treatment |
| Mean |
1.5 years |
1.2 years |
| Range |
0.2-5.7 years |
0.5-1.7 years |
| Standard deviation |
1.2 years |
0.4 years |
| Follow-up Time Since First
Surgery |
| Mean |
6.1 years |
6.9 years |
| Range |
3.4-10.2 years |
3-12.2 years |
| Standard deviation |
2 years |
3.3 years |
Study
Methods
The research was based exclusively on an
independent evaluation of the clinical files.
Evaluation Fields and
Criteria
The following areas are noted and put in
relation to the pre-surgical situation: psychopathology,
suicidal tendencies, criminal record, economic factors,
partnerships and sexuality, treatment complications. (The
evaluation criteria were taken partly from Hunt &
Hampson [1980a]).
The physical results of the sex reassignment
(including all corrective surgeries) was evaluated with
the aid of a score system in which the following criteria
were included: the external (anatomical) aspects were
graded as good (+1), satisfactory (0) and unsatisfactory
(-1); in the functional aspects: good (+1) was considered
for males if they achieved a problemless excretion
function and being free of pain, while for females
"additionally the possibility must be give to have a
frictionless (sic!) intra-vaginal sexual
intercourse" (p. 59); as fair result (0) the
slightly problematic excretion function was evaluated,
also pain and a significant limited functional capability
of the vagina; finally, a bad result (-1) contains a
severely problematic excretion function and/or, for
females, the anatomic possibility for sexual intercourse.
The external appearance of the dressed patient: if
adequate to the new gender, a rating of +2; questionable
or not adequate, -2.
To evaluate the treatment success from the patient's
view a score system with three inherent questions was
used: if the patient was satisfied with the gender
reassignment (+1), fairly satisfied (0) or not satisfied
(-1); if the patient would undergo the surgery again with
reservations (+1), with some reservations (0), not again
(-1); if the patient regretted surgery (-2) or not (+1).
In case a patient did not know an answer to a question,
it was evaluated as zero.
The external evaluation was made by the treating
physician in three steps (good, fair, bad) by the
following three criteria: external appearance, dressed as
well as naked, in how far the patient was satisfied with
the morphological as well as the functional results, and
if the patient accepted oneself in the new gender role;
in how far the patient was recognized in the new role in
a social environment.
Results
Females: Pre-surgically five females
had severe, and four fair psychopathologies. All these
patients were classified as secondary transsexuals. Three
females each had post-surgically worsened, resp.,
bettered. Ten females had encounters with the law and
were sentenced before surgery - post-surgically, probably
two. "It is notable within the results that all
criminal acts were attributed exclusively to patients
with a severe psychopathology. Also the biological male
patients seemed to be worse off, with a criminal rate of
50% before surgery and 11% after surgery than the females
- with 9% each" (p. 39).
Post-surgically in the professional area there was
a slight improvement in four cases compared to the
pre-surgical time and in three cases, a worsening.
Self-sufficiency and stability showed no notable
differences between pre- and post-surgical values.
Post-surgically 39% of the females had a
professional-economic situation improvement. Worsening
was found for 17%.
"The value to the libido in the medical files
had shortcomings because for only half of the cases were
there entries about them. The libido for females
post-surgically seemed to be at the same level as before
surgery. With at least 39% of the females the libido
seemed to be strong pre-surgically and in at least half
of all cases, normal or stronger" (p. 44). Ten
females were sexually satisfied post-surgically, compared
to four pre-surgically; only one was not sexually
satisfied and pre-surgically this was true for nine. The
"orgasm capability" "existed" before
surgery in 14 females (p. 45), post-surgically for 12.
The sexual activity with a partner was "relevantly
greater" (p. 45) post-surgically for ten females.
Before surgery seven females lived promiscuously at times
and after surgery, 11; while seven were never promiscuous
pre-surgically, post-surgically three never were. Three
females each were pre-, resp., post-surgically working as
prostitutes. Three females worked as prostitutes both
before and after surgery.
Before the role change, five females were married,
two had children. After the legal gender change four
females got married - of whom two were already divorced
at the time of the follow-up study and had married again.
Seven females lived post-surgically in permanent living
situations and dwelling-sharing groups - at least three
of which had existed before surgery.
The anatomic result was evaluated for 12 females
as good, for five as satisfactory and for none as bad.
Functionally 13 classified as good, one as fair, three as
bad. To the latter belonged a patient who never wanted a
vagina and rejected sexuality and a female who "had
as a risk factor a high age and a certain social
neglect" (p. 51). All except two females had an
appearance that corresponded to the new gender role. The
two exceptions were one female who did not take her
hormones regularly and even discontinued them at times
and the already-mentioned patient who did not get
sufficient estrogen therapy because of a lung embolism.
Only one female was subjectively not satisfied with
the results of surgery; three were only fairly satisfied.
One female was unsure if she would repeat the surgery;
all others would have done so even though three announced
certain reservations. No female regretted the surgery.
According to the judgement of the treating physician the
result of surgery was good for 11 females, satisfactory
for six and bad for none.
Males: Pre-surgically two males each had severe,
resp., fair psychopathologies. Post-surgically two
males improved. One male each had a criminal conviction
pre-, resp., post-surgically.
In the professional classification a slight
improvement, resp., worsening each was found compared to
the pre-surgical data. Self-sufficiency and stability
showed no significant differences between pre-surgical
and post-surgical values. For 27% of the males there was
improvement of their professional/economic situation
post-surgically. There was worsening for only 9%.
"The data in the clinical files about the libido was
incomplete because records about it existed in only half
the cases ... there ... was only a minimal upward
trend" (p. 44). Post-surgically seven males were
sexually satisfied compared to two pre-surgically; only
one was not satisfied sexually post-surgically, where
this had been true for four pre-surgically. "Orgasm
capability existed" (p. 45) for four males. Eight
males report about post-surgical orgasms. Sexual activity
with partners was for four males "relevantly
greater" (p. 45) post-surgically. Of the males, one
behaved promiscuously pre-surgically and probably another
one post-surgically. In one case a post-surgical activity
as a prostitute was presumed. Before surgery none of the
males was married; four were married
post-surgically and of these one was filing for divorce
at the time of the follow-up study. Five males lived in
intact partnership situations, two of which had existed
already before surgery.
The anatomic results were classified as good in
six cases, as satisfactory in four and as unsatisfactory
in one. Without exception the functional results were
good and the appearance fitting.
The self-evaluation was also completely good. The
question about a neo-phallus, that most patients would
have liked in as far as it would have been possible to be
made anatomically and functionally satisfactory, was left
out.
he judgement of the treating physician about the
results of the sex reassignment was "good" in
nine cases, "satisfactory" in two and
"bad" in none.
Single Case
Studies
For all patients the most important results
are represented coded in tabular form. Short
illustrations from the biographies are given regarding
some aspects. Three single case studies are presented
extensively. Also those patients not evaluated in the
research of the total sample are described in the annex
in annotated form.
Suicide Attempts/Role
Re-reversal
Females: Pre-surgically two MFTs
attempted self-mutilation and another one threatened
self-mutilation. Ten MFTs had attempted to commit suicide
and one had expressed threats. Post-surgically four
females attempted suicide and only one of these had no
suicidal tendencies pre-surgically.
Males: Two FMTs attempted suicide pre-surgically.
One had expressed threats. Post-surgically one
male attempted suicide who had not had suicide tendencies
previously. "Remarkable is the post-surgical
decrease of suicide attempts from 56% to 22% in
male-to-female transsexuals, as well from 18% to 9% in
female-to-male transsexuals" (p. 36).
Follow-up Studies Mentioned
Benjamin, 1964a, 1966, 1969; Blanchard et al.,
1985; Eicher, 1984; Hamburger et al., 1953; Hastings
& Markland, 1978; Hoenig et al., 1970a, b; Hunt &
Hampson, 1980b; König et al., 1978; Kröhn et al., 1981;
Laub & Fisk, 1974; Lindemalm et al., 1986; Lothstein,
1980, 1982; Lundström et al., 1984; McCauley &
Ehrhardt, 1984; Meyer & Reter, 1979; Money &
Ehrhardt, 1970; Pauly, 1965, 1968, 1974, 1981; Randell,
1969; Simona-Politta, 1983; Sörensen, 1981a, b; Stürup,
1976; Wålinder, 1967; Wålinder & Thuwe, 1975;
Wålinder et al., 1978
Authors' Conclusion
"Summarizing, it can be said that the
studies in the course of the 1970s were based
increasingly on an exact data compilation and on exactly
defined criteria. As results, the pre-quantitative and
quantitative research report about a post-surgical
improvement of approximately two-thirds of patients"
(p. 18). "The results achieved in Bern in sex
reassigned transsexuals are good in international
comparison. The treatment has shown mostly positive
results that are sufficient to justify the severe
procedures. Sex reassignment for appropriate true
transsexuals can be recommended because of this
reason" (p. 76).
Indication Recommendations
The only prognostically unfavorable factor
that was found in this study was the existence of another
psychopathologic disorder besides transsexualism.
"But this does not exclude in any way that patients
with severe emotional disturbances could gain by sex
reassignment" (p. 75).
Remarks
This publication contains statistics about
the development of the numbers of first consultations of
patients with transsexual symptoms in the University
Clinic of Bern from 1969 to the middle of 1987, as well
as the number of sex reassignment surgeries in Bern
during the same time period (pp. 60-62). With regard to
the prevalence ratios calculated by Wålinder (1967) as
well as Hoenig & Kenna (1974), the in -Bern-realized
sex reassignments would correspond to 49% of the
surgeries to be expected for MFTs, resp., 69% of those to
be expected for FMTs in Switzerland.
The single case studies demonstrate that the pre-surgical
treatment did not correspond to the published treatment
principles (König et al., 1978) and the requirement for
a one- to two-year-long Real-Life-Test before the
indication for surgery was made. Two patients were under
guardianship or legal aid pre-surgically; even under
conditions of incarceration the treatment was started.
The case studies clearly show that it was more about
satisfying individual patients than about general
principles. A severe shortcoming of the publication is
that it bases mainly on the evaluation of clinical files
and retrospective external evaluations, not on immediate
follow-up studies.
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