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Chapter 3: Follow-up studies in chronological order
Pfäfflin & Junge, 1990
Dept. of Sexual Research, Psychiatric Clinic and
Dept. for Psychosomatics and Psychotherapy, Medical
Clinic, University Hospital Hamburg-Eppendorf, Hamburg,
Federal Republic of Germany
This follow-up study
describes a sample with approximately the same proportion
of females and males. This research was done in
collaboration with the University of Minnesota Medical
School, where it was planned to expand on the follow-up
research started previously by Hastings & Blum
(1967), Hastings (1974) and Hastings & Markland
(1978). It was designed so that a comparison with the
unfinished research there would be possible. The sample
contains seven females who were followed-up already by
Spengler (1980) and the males described by Junge (1987).
| Sample |
Females
(MFT) |
Males (FMT) |
| Operated |
140 |
60 |
| Invited to follow-up study |
76 |
59 |
| Followed-up* |
42 |
43 |
| *As to the representivity
of the sample: With females as with males, there
was no significant difference regarding age and
evaluation of the pre-surgical emotional, social
and professional situations and -- in as far as
corresponding information was available --
post-surgical evaluation of these areas between
participants and non-participants. For reasons of
work extent, only three-quarters of females were
invited to the follow-up study by systematically
leaving out every fourth name in the alphabetical
listing. |
| Age at Time of First Surgery |
| Mean |
34.1 years |
27.8 years |
| Type of Treatment |
| Psychiatric outpatient
treatment* |
39(92.8%) |
33(78.6%) |
| Psychiatric
hospitalization* |
15(35.7%) |
17(39.5%) |
| Hormones |
41(97.6%) |
42(97.7%) |
| Breast enlargement, resp.,
breast reduction |
13(31%) |
43(100%) |
| Orchidectomy, resp.,
hysterectomy |
42(100%) |
40(93%) |
| Penectomy, resp.,
phalloplasty |
42(100%) |
7(16.3) |
| Vaginoplasty, resp., vagina
closure |
41(97.6%) |
6(14%) |
| *Psychotherapies in the
strictest sense were not recorded, especially not
long-term psychoanalytic, psychodynamic or
behaviorial therapies. Some patients had taken
part in group therapies limited to three months
each. Some had started psychodynamic
psychotherapy, but did not continue long-term,
whereby the discontinuing was provoked from the
side of the patient as well as the therapist. In
the psychological therapeutic area, there were by
far more treatments of varying frequencies and
lengths that would have been better characterized
as supportive psychiatric treatments. Psychiatric
hospitalization was necessary mostly in
connection with suicidal crisis but, in very few
cases, was used exclusively for diagnostic
purposes. |
| Treatment Complications |
| Hormone intolerance |
12(35.3%) |
3(7.1%) |
| Breast inflammation |
2(5.2%) |
6(13.9%) |
| Genital inflammation |
15(37.5%) |
3(7.3%) |
| Fistula, transplant
rejection |
11(26.8%) |
1(2.4%) |
| Other breast corrections |
3(8.3%) |
14(32.6%) |
| Other genitalia corrections |
17(44.7%) |
5(12.5%) |
| Follow-up Study Period Since
First Surgery |
| Mean |
5.1 years |
6.7 years |
| Range |
1-21 years |
1-18 years |
| Standard deviation |
4.13 years |
6.6 years |
| Age at Time of Follow-up Study |
| Mean |
39.1 years |
34.6 years |
| Range |
25-68 years |
21-65 years |
| Standard deviation |
9.79 years |
9.2 years |
Study
Methods
The research was based on the following
sources and procedures: (1) Evaluation of the hospital
files. (2) Interview of one to four hours, as mean two
and a half hours in length. (3) Physical examination
(females), resp., inspection of the surgical results
(males) and photographic documentation. (4)
Katamnesis questionnaire. (5) Independent evaluation of
the results by two researchers, at least one of whom did
not participate in treatment.
Katamnesis questionnaire: For the standardized
compiling of the katamnestic life situation, a German
translation of a questionnaire developed and tested for
sex reassignment surgery (Satterfield et al., 1981,
unpublished) was used. The questions refer to the
following areas: medical treatment, professional
development, family, friends, partnerships, sexual
experience, general and emotional well-being. From the
answers, a scaled value for the professional, social and
emotional situation of the subject for the previous 12
months can be determined and can then be compared, as a
self-evaluation, to an external evaluation of these
areas.
External rating of the pre- and post-surgical life
situation: The pre-surgical living situation of
patients was evaluated by the primary author, who knew
some of the patients from previous or current treatments,
by evaluating clinical files. The evaluation of the
katamnestic well-being was scored independently from
information gained in semi-structured interviews by both
researchers participating in the interviews. When only
one interviewer was present, the second opinion came from
the interviewer's written or taped records.
Statistical evaluation: The inter-rater
reliability was r=.87 for the sample of males and
r=.83 for the sample of females.
Evaluation Fields and
Criteria
For both times there was an external
evaluation of the professional, social and emotional
situations on a four-step scale whose values (according
to Satterfield et al., 1981, unpublished) were determined
as follows:
| Professional
situation |
| 1- |
mostly unemployed, continuous
conflicts with employer, notably dependent on
familial or public support, very unsatisfied with
professional situation. |
| 2- |
sometimes unemployed,
difficulties with employer, financial
dependencies from time to time, fairly unhappy
with professional situation. |
| 3- |
mostly employed permanently,
unemployed only short-term, few difficulties with
employer, insignificant financial dependency on
familial or public support, fairly happy with
professional situation. |
| 4- |
long-term employment without
unemployment, no or few difficulties with
employer, very satisfied with professional
situation. |
| |
|
| Social
contacts |
| 1- |
lacking social network, notable isolation
from family, friends and other important
emotional relationships, only short, fleeting and
superficial contacts, no social support,
rejection of family and friends, very unhappy
with the social situation. |
| 2- |
minimal social network, relatively isolated
from family, friends and other important
emotional relationships, only few long-term
contacts and little social support, strong
dependency on familial ties, fair
non-satisfaction with the social network. |
| 3- |
appropriate social network with emotional
support of family, friends and acquaintances,
capability to enter and maintain long-term
relationships, fairly satisfied with social
contacts. |
| 4- |
very good social network and many contacts
and emotional support, a capability to enter and
maintain longer term relationships, very
satisfied with social contacts. |
| |
|
| Emotional
situation |
| 1- |
at least one suicide attempt
and/or multiple psychiatric hospitalization with
frequent suicidal thoughts, drug abuse, major
shortcoming in coping with everyday problems,
great emotional difficulties. |
| 2- |
no suicide attempt, possible
suicidal thoughts, occasional psychiatric
hospitalization and/or outpatient mental
treatment, drug abuse, notable shortcomings with
coping with everyday problems, emotional
difficulties. |
| 3- |
no suicide attempts or serious
suicidal thoughts, no psychiatric hospitalization
and mostly independent from outpatient
psychiatric treatment, no drug abuse, slight
shortcomings in coping with everyday problems,
occasional emotional difficulties but overall
satisfied with emotional state. |
| 4- |
no suicide attempts or suicidal
thoughts, independent from psychiatric treatment,
no drug use, emotional well-being and very
satisfied with emotional situation. |
Evaluation of
surgical results: The surgical results were
evaluated by the primary examiner directly and by
the secondary examiner from photographic
documentation and the statements in the interview
as well as, as far as available, explicit
surgical reports, - independently from each
other.
The evaluation for females was done by use
of a score system, in which a maximum score of 16
could be achieved. Evaluated were:
|
| 1- |
position and function of the urethra opening
(max. 2 points). |
| 2- |
depth of vagina (none=0 points; greater than
4 cm.=1 point; 4-6 cm=2 points; 7-8 cm.=3 points;
greater than 8 cm.=4 points). |
| 3- |
entrance width of the vagina (max. 2 points). |
| 4- |
cosmetic result of the vulva (max. 4 points). |
| 5- |
absence of scars after skin transplants (max.
2 points). |
| 6- |
cosmetic results of the hormonal and/or
surgical breast enlargement (max. 2 points). |
| |
|
| The evaluation of
the surgical results of the breast area for males
was done in a four-step scale: |
| 1- |
very big, protruding scars, too much
remaining breast tissue, very big or missing
nipples, extreme asymmetry of scars, nipples
and/or remaining breast tissue. |
| 2- |
severe scarring, too much or too little
remaining breast tissue, big nipples, asymmetry
of scars, nipples and/or remaining breast tissue. |
| 3- |
little scarring, adequate form and amount of
breast tissue, symmetry of nipples. |
| 4- |
hardly noticeable scarring, typical male form
of the breast, small nipples, symmetric. |
Results
Emotional, social and professional
situations: The evaluation is that the post-surgical
situation has improved significantly (p>0.01) as a
mean in all areas mentioned in comparison to the
pre-surgical evaluation. This is valid for females and
for males. With exception of the social contacts scale,
there were no significant differences in the self- or
external evaluation for males and females.
The results of the pre-post comparison on the
four-step scale show the greatest changes in the mental
health (a mean improvement of 2.29 scale points for
females and 2.07 scale points for males) and the smallest
in the evaluation in the professional situation (a mean
improvement of 1.13 scale points for females and 1.26
scale points for males). Worsening was the exception and
regarded exclusively the professional and social
situations. In detail, there were the following results:
Females: Only about half of the females had
permanent employment (n=18; 47.4%) at the
follow-up time, but three of four (n=29;72.5%) were able
to provide for their own support. One-quarter of the
females needed financial support and were very unhappy
with their professional situations. In as far as
employment existed, the previous transsexualism was not
known to colleagues and only one female each had on
occasion, resp,. sometimes, difficulties at the work
place because of it.
At the time of the polling, 23 females (56.1%) lived in a
permanent partnership. In the year previous to the
polling, only ten females (24.4%) had had no partner.
Thirteen females (46.6%) could keep their previous
transsexualism a secret from all partners with whom they
had been since surgery. Three-quarters (n=28, 75.7%)
selected mostly or exclusively males as sexual partners;
nine (24.3%) preferred females. Only five females (11.9%)
did not enter into sexual relationships. Of the sexually
active females, 25 (69.4%) affirmed the question if they
experienced orgasms. Subjectively 33 females (78.5%)
evaluated their general emotional state in the
year previous to the polling as good or very good. Eight
females (19.5%) were in outpatient psychotherapeutic
treatment. One female had been multiple times
hospitalized in psychiatry during the previous year.
Males: More than three-quarters of the males
(n=33; 76.6%) at the time of the follow-up had lasting employment
and were capable of providing for their own lives.
Almost 80% (n=35) were satisfied with their professional
situation. The work colleagues generally did not know
anything about the previous transsexualism, but one male
had problems at the workplace because of it.
At the time of follow-up 31 males (72.1%) lived in a
lasting partnership. In the year previous to the
polling, only eight males (18,6%) had had no partner. Four
males (10.4%) had been able to keep the previous
transsexualism a secret from their partners. The
sexually-active males had selected exclusively (n=35;
89%) or mostly (n=4; 10.3%) females as partners. Four
males (9.3%) had not entered into a sexual partnership
after surgery. Eight males (19.5%) expressed
non-satisfaction with their sexual experience.
Thirty-five males (83.3%) evaluated their emotional
well-being in the year before the polling as good or
very good. Five males (11.9%) were in psychotherapeutic
treatment. One male had been hospitalized multiple times
in psychiatry during the previous year.
Surgical results: The maximum score (16) in the
evaluation of surgical results for females by
cosmetic and functional viewpoints was reached only once.
Point values of 14, resp., 15 were reached twice; 13
points four times, 12 points five times. The lower scores
(11 points once, ten points four times, nine points three
times, eight points twice and seven points once)
described results that were subjectively and objectively
unsatisfactory. The cosmetic results were evaluated for
the males mostly as very bad (seven times; 20%) or
as bad (11 times; 34%). Only nine persons
(25%) were evaluated as being good and eight persons
(22%) very good. There was a significant correlation
(p=0.01) in the overall evaluation of surgical results by
the researchers and the answers of the questionnaire
about satisfaction with the appearance of the breasts for
the males (r=.58), resp., satisfaction about the
appearance and function of the female genitals (r=.55).
Suicide Attempts
Three females (7.2%) had attempted suicide
during the 12 previous months. One male had attempted
suicide when, additional to the difficulties about the
first name change and legal sex change (he did not have
German citizenship and thus could not make use of the
German Transsexual Law), the health insurance wanted
ex-post-facto to reject paying the surgical costs.
Authors' Conclusion
"Nowadays a valid treatment maxim, even
though not respected everywhere, is that to transfer a
transsexual for a surgical procedure or to administer
hormones without sufficient counseling is seen as
malpractice. For many of the statistically represented
patients here, this rule was surely not regarded
sufficiently. Especially those females who had come into
possession of hormones on the black market and underwent
surgery in Casablanca, Morocco, had done this frequently
on their own account and had never been under regular
medical care in their home country. Surprising as the
overall positive results were, it has to be admitted that
the scales and evaluation procedures used in the
follow-up study are an extraordinarily rough pattern not
adequate to record the many appearance forms of
individual suffering. To be especially highlighted are
the results that the global ratings of the external
evaluation correlate closely with the self-evaluations
and also that statistically significant worsenings were
not found any place and that, even regarding single case
studies, are an exception."
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