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Chapter 4: Reviews
Green & Fleming, 1990
School of Medicine, University of California, Los
Angeles, CA, USA
This review that appeared
in the first volume of the Annual Review of Sex Research
of English-language follow-up studies that were published
between 1979 and 1989 and whose average follow-up study
time was at least one year. Eleven follow-up studies are
regarded and additionally the reviews by Pauly (1981),
Lundström et al. (1981) and Abramowitz (1986) are cited.
Sample
Overview
The samples of the following publications were compiled:
Blanchard et al. (1989); Edgerton et al. (1982); Fleming
et al. (1982); Hunt & Hampson (1980b); Kuiper &
Cohen-Kettenis (1988); Lindemalm et al. (1996, 1987);
Meyer & Reter (1979); Ross & Need (1989) and
Sörensen (1981a, b). Additionally it was inquired at the
larger North American Gender Identity Clinics by phone if
other publications were in publication or in print. This
query brought about the indication to the publication of
Mate-Kole et al. (1990) from the Charing Cross Hospital
in London.
Evaluation Fields and Criteria
The results were divided into the categories
"satisfactory," "unsatisfactory" and
"uncertain," wherein the authors themselves
characterized this classification as gross.
"Generally, unless the patient is reported to regret
the surgery, the outcome is considered
"satisfactory." We recognize the inherent
limitation of judging such results
"satisfactory." We are also mindful of the
propensity to report major life decisions as having been
wisely taken. However, these gross categories are offered
to provide a general impression of reported follow-up
status, which must be elaborated upon further" (p.
164).
| Results |
n |
satisfactory |
unsatisfactory |
uncertain |
| Females |
200 |
191 (87%) |
28 (13%) |
1 (<1%) |
| Males |
130 |
126 (97%) |
4 (3%) |
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Methodological Issues
It is difficult to draw generalized conclusions
because standardized selection criteria for surgery do
not exist and standardized instruments for the
measurement of the results and their evaluation are
seldom used. Nothing important has changed about this in
the 25 years in which the surgical treatment has been
established at North American university clinics. The
Standards of Care of the Harry Benjamin Gender Dysphoria
Association are seldom mentioned in follow-up studies
and, possibly because of this, also find little
consideration in treatment. The samples are frequently
small and this is why supraregionally made follow-up
studies are necessary.
The question about representativity of patients
compiled in follow-up studies is especially to be
clarified because the number operated is many times
greater than documented cases. Also it must be controlled
in how far any changes of anxiety, depression, drug
abuse, capability to keep up partnerships and similar are
in causal connection with treatment or have developed
over a course of time independent of treatment within the
frame of a general personal development. It would be
desirable to have detailed single case representation of
post-surgical courses.
Author's Conclusions
The authors protest the policy of many private
health insurance firms in the USA that deny to take over
the costs for surgical treatment by claiming that they
are cosmetic and/or experimental treatments. To call such
procedures cosmetic is considered, in view of the
suffering of patients, as cynical; to call the
classification experimental is untrue, in view of the
circumstances that such surgery is established in many
centers inside and outside the USA and -- as is to be
seen by follow-up studies -- has proven worthy. Other
surgeries, such as liver and heart that are covered by
insurance without question, are much more experimental.
The authors finish pathetically saying "Helping
these medical orphans was the goal of Harry Benjamin. It
remains ours" (p. 174).
Remarks
The small literature selection of the
review is to be criticized. The publications of Lindemalm
et al. (1986, 1987) are, even though it is the same
sample, evaluated twice. Remarkable is the evaluation of
the author regarding the evaluation criteria of surgical,
resp., treatment results. Despite their above-mentioned
second thoughts about the widely dispersed result
categories, they say, "Although, at first glance,
basing outcome on the patient's statement that she or he
does not regret reassignment may appear simplistic and
naive, perhaps such a statement is sufficient" (p.
172), which simplifies too much. If the only thing that
results from treatment is that a patient does not
"regret" without that the treated feels better
in any way, one has to ask what the big effort is all
about. Finally, this evaluation disregards that follow-up
studies are to work out differential indication criteria.
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